Hi all,
For various reasons it has been a while since I wrote on here and since the auction/raffle where we raised a massive total for Epilepsy Action. We just want to thank everyone that came and supported the night and helped us raise so much. Also thanks to Neil and Sentinel we have managed to raise another £320 for a prize outside the auction, taking the total up to ... £6,609.26.
A fair bit has been going on since the auction, which has led to the majorly disappointing news that I've been told I'm not allowed to run the marathon ...
Due to my seizures returning again after a relatively stable period, I had to try an increased dose of medication. This didn't agree as I couldn't stand up without feeling dizzy and falling into things... most people know I also have a bleeding disorder - so this wasn't a great side effect unless I wanted to use Manchester's supply of platelet transfusions!
Therefore the decision was made to add a second medication onto my normal dose of medication. As always it takes a while to get used to this medication and its side effects, which is a process I am still going through.
The main issue is fatigue which is something I am currently trying to reduce in various ways as I know it is one of my main triggers. Therefore the decision from the consultant that I can't train for the marathon, although a really disappointing one, hopefully means I can gain control of my epilepsy. I remember from 2012 it is the training for the marathon which is the hardest part (having to train 5/6 times a week) and something I would have had to start last week, which currently isn't feasible.
I decided to run the marathon when I thought I had fully gained control of my seizures but this has just shown me how unpredictable the condition is, giving me more incentive to raise awareness and support for the charity.
Jonny will continue to run the marathon and fly the flag for the charity! I hope no one who has supported us so far feels aggrieved that I have had to pull out.
Exercise will always be good for me (just not the extent of the strain marathon puts on you) so I am determined to complete a few smaller events/runs throughout the year (such as Manchester 10k) and continue to raise awareness of the condition because as I've found out in the last few months it really can have all sorts of effects on you!
Happy New Year to you all.
Sara x
Ps go Jonny and maybe next year.
For various reasons it has been a while since I wrote on here and since the auction/raffle where we raised a massive total for Epilepsy Action. We just want to thank everyone that came and supported the night and helped us raise so much. Also thanks to Neil and Sentinel we have managed to raise another £320 for a prize outside the auction, taking the total up to ... £6,609.26.
A fair bit has been going on since the auction, which has led to the majorly disappointing news that I've been told I'm not allowed to run the marathon ...
Due to my seizures returning again after a relatively stable period, I had to try an increased dose of medication. This didn't agree as I couldn't stand up without feeling dizzy and falling into things... most people know I also have a bleeding disorder - so this wasn't a great side effect unless I wanted to use Manchester's supply of platelet transfusions!
Therefore the decision was made to add a second medication onto my normal dose of medication. As always it takes a while to get used to this medication and its side effects, which is a process I am still going through.
The main issue is fatigue which is something I am currently trying to reduce in various ways as I know it is one of my main triggers. Therefore the decision from the consultant that I can't train for the marathon, although a really disappointing one, hopefully means I can gain control of my epilepsy. I remember from 2012 it is the training for the marathon which is the hardest part (having to train 5/6 times a week) and something I would have had to start last week, which currently isn't feasible.
I decided to run the marathon when I thought I had fully gained control of my seizures but this has just shown me how unpredictable the condition is, giving me more incentive to raise awareness and support for the charity.
Jonny will continue to run the marathon and fly the flag for the charity! I hope no one who has supported us so far feels aggrieved that I have had to pull out.
Exercise will always be good for me (just not the extent of the strain marathon puts on you) so I am determined to complete a few smaller events/runs throughout the year (such as Manchester 10k) and continue to raise awareness of the condition because as I've found out in the last few months it really can have all sorts of effects on you!
Happy New Year to you all.
Sara x
Ps go Jonny and maybe next year.