From my last blog, I had such a great response with messages from as far as America, some saying I had helped them in their journey with epilepsy. Some saying I had raised their awareness of what epilepsy is and the affect it can have. So if sharing my experience helps one other person it is worth it, that's why I've decided to write this one too.
People have also sent me pictures of them giving blood for the first time or their appointments to give blood, which is amazing I may have influenced helping one person in their time of need in the future.
I've had a fair few complications from my seizure I last blogged about, only just feeling better nearly 7 weeks on. My tonic clonic seizure on 1st September led to a few broken bones, needing crutches and an air cast boot, bruises, multiple platelet transfusions, infections, epilepsy medication increases, side effects from that, needing more medication to counteract the side effects, countless times in hospital clinics, a 9 day stay in hospital - half of which I don't remember, more medication needing to be given IV, hallucinations, multiple other seizures whilst in hospital, my family and friends having to watch a crash team be called to me, waking up on oxygen masks not knowing where you are, having to have help doing the most basic tasks, holidays having to be cancelled, countless tears shed all due to one seizure. This is the side of epilepsy people don't see.
The last thing I want is sympathy, I just want to raise awareness that epilepsy isn't one seizure and back to normality after 5 minutes like it is often portrayed, it comes with a lot more complications.
I am so lucky to have such a great support network that have been a rock for me. But there is always someone there for everyone including the epilepsy charities to get support from.
But today is the day to move on for me ...
Time to get back to normality and leading a life of a 25 year old with a new aim of being a year seizure free on 7th October 2017.
Sara